False Hope: A Bioethics Case Study
DOI:
https://doi.org/10.59706/aebmedicine.v1i2.7863Abstract
This text portrays the case study of a newborn who was diagnosed with gastroschisis, a congenital structural defect of the abdominal wall. The narrative explores the ethical questions raised by the complications of this case, focusing on three key issues: the bioethics principle of beneficence, patient transfer guidelines and parent decision-making capacity. The conclusion highlights the tension between parental autonomy and the potential for harm to the child, citing the parens patriae doctrine and the Harm Principle as possible grounds for state intervention in the United States. Overall, the text highlights the complexity of ethical considerations in medical cases involving children and calls for individual analysis and collaboration among healthcare professionals to find optimal solutions.
Downloads
References
(1) Chuaire Noack L. (2021). New clues to understand gastroschisis. Embryology, pathogenesis and epidemiology. Colombia medica (Cali, Colombia), 52(3), e4004227. https://doi.org/10.25100/cm.v52i3.4227
(2) Ginglen, J. G., Butki, N. (2022). Necrotizing Enterocolitis. In StatPearls. StatPearls Publishing.
(3) Eijkholt M. (2020). Medicine's collision with false hope: The False Hope Harms (FHH) argument. Bioethics, 34(7), 703-711. https://doi.org/10.1111/bioe.12731
(4) Stern E. G. (2019). Parens Patriae and Parental Rights: When Should the State Override Parental Medical Decisions?. Journal of law and health, 33(1), 79–106.
(5) Diekema D. S. (2004). Parental refusals of medical treatment: the harm principle as threshold for state intervention. Theoretical medicine and bioethics, 25(4), 243–264. https://doi.org/10.1007/s11017-004-3146-6
(6) Appropriate Interfacility Patient Transfer. (2022). American College of Emergency Physicians. https://www.acep.org/siteassets/new-pdfs/policy-statements/appropriate-interfacility-patient-transfer.pdf
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 Ariana Martin
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
CC Attribution-NonCommercial-NoDerivatives 4.0 license.